American Board of Genetic Counseling

American Society of Human Genetics (ASHG)

Cancer Web

CDC Office of Genomics and Disease Prevention

Disability Rights

Directory of Genetic Support Groups

Family Village

Family Voices of New York (FV of NY) - provides information and resources to families of children and youth with special health care needs (CYSHCN) and the professionals who work with them through individual information and referrals, parent matching, conferences and sharing of materials including care notebooks and resource guides. Continuing to work with families to promote leadership and advocacy has increased state membership and helped to introduce Family Voices to more families. FV of NY partners with Title V on the NY Title V Needs Assessment and Block Grant. Family Voices of New York has also provided education and training for pediatric residents, nurses and dentists.

GeneClinics

GeneTests - a publicly funded medical genetics information resource developed for physicians, other healthcare providers, and researchers, available at no cost to all interested persons.

Genetics Alliance - This is an organization devoted to promoting optimum health care for people suffering from genetic disorders.

Understanding Genetics: A Guide for Patients and Professionals

Does It Run In the Family?, a family health history toolkit

Genetics and Your Practice

Genetic Societies Home Page

Genetics Education Center

Health Advocacy (Sarah Lawrence Graduate Studies program)

Health Advocacy Bulletin (a special issue on health advocacy and human genetics, featuring "Responding to a Genetic Disorder: A Case Becomes a Cause," by Katherine R. McCurdy, founding Board Member of the Barth Syndrome Foundation, Inc.)

Human Genome Project Information

Human Genome Resources

March of Dimes Online Genetics Resources for Professionals

March of Dimes

National Human Genome Research Institute

National Organization for Rare Disorders

National Society of Genetic Counselors - Resource link for finding a Genetic Counselor

NCHPEG - National Coalition for Health Professional Education in Genetics

Online Mendelian Inheritance in Man

Reprotox